Children sit playing bongo drums
scraggly hair couples in loving circles signes of infinity scraped on each dirty neck a tribe of the present anti- government, taxes, rules, hey but that was my parking spot. What have you done, America? He's out on parole after three months for rape? Flowers gently rest in the barrel of the soldiers rifle and gentle fingers sign the go-ahead to let Fat Man and Little Boy fly. The mind's eye sees that day and some guy on the hill has a never greasy formula to fix all these blemishes on the six-o-clock news. There's East Coast where breakfast is served all night to pierced platinum haired people seeing the speed of life and running with it, car by car. Where a diamond is a rock and gold chains are as common as roasted chestnuts on a streetcorner. West coast has tans, who's washing my car today? Skipping on bleached streets views from a mountaintop of the forest hills with huge cuts and chunks missing from the wooded hills eaten by the man-parasite. Who's got time for dinner together? Lunch together? Nope. What have you done, America?
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They're right.
The ones that walk strides matching beats welling up in the soles of their converse. They walk easy like Sunday morning never lifting their heads to see anyone else walk by because those that don't feel the swelling music don't exist. I long for that note-filled solitude every beat. If I didn’t talk about myself
Or write about myself Or think of myself everyday Or journal about myself Or what I want Or wanted Or thought I wanted And watched (and listened) to those around me instead To see what they have to say, how they move, how they just…are So much focus on ourselves/myself I’m sick of thinking of my own wants and needs I think now about being surrounded by people in capes representing their countries as they hoped to get a glimpse of the Pope in Portugal Why were they there Who were they What were each of their stories, these young people from all over the world There was so much humanity I met someone the other day At the dentist I asked her how she was doing She looked like a normal human with a normal life And then she told me about the twins she is carrying And how she is a surrogate for an Italian couple who are gay And cannot carry their own child They were hoping for a sibling She has been their surrogate before And they got two She was feeling sick the day before And fainted, hit her head, had to be admitted to the emergency room This angel of a human Carrying life for those who cannot Who chose to share her true self with me While I waited for a cavity to be filled on my child And I was struck by her honesty And the fact that she was willing to reveal so much to me It made me feel like I want to know more about EVERYONE How would you like to live? What do you want from this life? What are your truths? What are your secrets? What makes you yourself? Are you curating a life you love? What are your hurdles? Do you love yourself? Are you happy? Are you happy? I didn’t know what to expect when I winged my way to Portugal
My own pilgrimage, combined with 1.5 Catholics on their way to see the Pope (this overlap was accidental, but oh what a happy accident) But I knew I would be safe with my people yet I worried that I would fall into a flare up of one of my illnesses or that I wouldn’t sleep or I wouldn’t be able to keep up with my sweet yoga crew. I’m still scared of my body. But I landed. I went on the journey, even though I was scared. We arrived in the hilly, colorful town full of boundless bougainvillea flowers, stairs, views of the vast river, the ocean, of life. We dropped right next to an old Roman amphitheater, met up with friends I haven’t seen in years, a reunion that is so sweet I am still trying to find the words. But I want to write something quickly, put words to my experience before my brain is tainted by regular life. I’m so proud of all of us, for how far we’ve come in four years. Four years ago, we were different people. In four years, we’ve overcome loss, tragedy, depression, separations, sickness and a worldwide pandemic. But so much grew…so many seeds my sweet friends have planted, and it is my profound and deep honor to bear witness to their new lives, to see how far they have come. New partnerships, new life, new jobs, new ways of being in the world. We’ve all worked so hard, tried to heal and grow with such care. We keep saying we’ve leveled up. This trip made us level up again. We surfed (!), ate amazing food, visited different towns, hiked to an abandoned Monastery on a blustery day, lay on the beach, swam in the Atlantic Ocean, taught each other yoga, hugged (a lot) experienced a Fado Portuguese music performance, did healing ceremonies, hung out in a castle, laughed, cried (me), visited museums, we did it ALL. And walked up a lot of hills. And, in the midst of all of the adventuring, I forgot to worry. I forgot to wake up each day wondering if my body would cooperate. I forgot to be sad. I forgot to live the lie I think I keep telling myself. I was just BEING. So now, now, I am sitting at the airport halfway home mulling over what I want my life to look like now. This new space that has been created is such a gift, one that I refuse to squander. I don’t know exactly which steps I will take moving forward But one thing I am sure of, is that I know some of the best people on the planet, and I love them more than myself. And right now, that is enough. There isn’t perfect cinema. We watch to be numbed, to be taken out of ourselves. But sometimes, sometimes, There is something that hits us hard, hard in our hearts. Thud. Thud. Thud. Crack. Sparkles. And we know we are connecting with the greater creative. The author Elizabeth Gilbert says: “Ideas move around space, seeking humans who will take them on and give them life.” According to Gilbert, humans do not give rise to ideas: “Ideas exist independently of us. This means that ideas are free to come and go as they please”. I believe this. I’ve seen it in action, and it has been both sad and pleasing. I think that it happens beyond movies. It’s food, it’s books, stories, entire lives. I have a lot of magic falling in my lap right now. Some of it I’ve created on my own, some of it has clearly been creatively crafted by the universe and the timing is precise. I feel like my head is surrounded by glitter bombs. I hope you can see them going off everywhere. I remember watching the movie “Crossroads” a lot as a kid and hearing my Dad tell stories about the musician Robert Johnson, who, as the myth goes, supposedly met the devil at the crossroads and sold his soul to be able to play the guitar, one of the greatest blues musicians of our time. I think about the juke joints he visited, playing surrounded by pool tables, Colt 45 bottles, jukeboxes, artwork on the walls. We listened to every one of his songs growing up. But the myth… The idea of being at the cross section of roads, each leading to different futures, I am standing there now. It is stark, desolate, the only thing of note are the telephone poles with lines running, energy humming between them. Here I stand. I don’t know how far to push, how far to fight for myself. I’ve been living very small, on purpose. No writing, no social media, no evidence of myself anywhere, for fear that I’ll be deemed too healthy. I’ve been trying to get disability since October of 2020, I just received my 2nd denial. If I appeal, I have to wait another year. 4 years to get my lawyer in front of a judge. Another year of tracking symptoms, working hard to find new ways to heal my body as it continues to morph, some symptoms dropping off, new ones appearing. I am still reliably unreliable. Do I keep fighting? Or do I just let it go, and give up? Do I walk to the right, left, forward or backward? I will just stand here for a bit, and see who might walk down the road. There are many types of addictions we humans must carry;
chemical, behavioral, the reward system, cravings, TV, sex, Facebook, control. We are products of our upbringing, of who we are born as, of our harshest moments, of our situations. It's not our fault. We all have many addictive behaviors, all that dopamine reinforcing your brain's actions, driving you to seek out what gives you pleasure, even if it causes harm. I have my own addictive tendencies (I used to revel in stalking and finding other people's spelling errors, before I lost my brain, that was a lesson, thank you very much Universe). I have to watch my workaholic impulses, it scares me daily that I will slide backwards and forget that "work" doesn't matter, doesn't have priority over all the other wonderful things in life. Family, living, breathing, being. My addiction to control is a lesson that I get to learn over, and over, and over in this lifetime. I know I have none, rationally. But, there is this little niggling feeling that I still have control, even though I keep learning the opposite in sometimes brutal situations. Over, and over and over. And over. I'll have a PhD in You Have No Control by the time I exit this human uniform. I've had people with various addictive propensities in my life. I love them all, we are all flawed. But the one type of addictive personalities that has caused me the most harm, are those that are addicted to their secrets. In LOVE with their secrets. They covet and create more, and more, a gossamer web of distortion. I don't know if this type of addiction has a definition, or is a "real thing", cursory glances at a few books doesn't say much about it. But, I am recognizing a pattern in people that I sometimes attract. Maybe it's who I am, maybe it's because I'm a bit of an innocent, but I've had enough people come through my doorway seeming to be one person, but then showing a penchant for hooey, fabrication, fiction. Some have been blatant about letting me stumble upon their secrets, wanting me to find them. Hiding everything in plain sight. Waiting, watching, probably getting high off of my reaction. I guess it's called Gaslighting (this term is based on a most excellent film from 1944 starring Ingrid Bergman, worth watching). Knowing that I will flounder in that direction, will make a discovery that will cause me to hurt, and there they were anticipating and observing, it makes me sad. And skeeves me out. Knowing that they were not doing right by me, on purpose. From the very beginning. I see this now. Another hard earned lesson, painful, but I have gratitude that I am able to detect it and examine it nowadays. And so, as I raise 2 tiny humans and hope to help them become good, kind, helping, humble bigger humans, and as I reflect on my lessons learned in my few years on this earth, our small family now talks about the 2 most important things we share. Love, and Truth. Because you can't have either without the other. Maybe this is a double negative. And I don't care. Check my grammatical errors, I dare you. :) Why are you so bitter tonight?
Why are you mad at the ballet teacher, who didn’t treat your daughter nicely? Mad about Reed College and how they took so much from you? Things that happened so long ago? Well, I’m mad for those reasons. And others. I’m angry at being trapped inside this body, This brain Neither that work in tandem anymore. I feel like I’m ½ of what I used to be. I’m angry that I had to lay in bed all day today (again) Hunting and seeking a nap because I slept for 4 hours last night And I never trapped the nap. All day, no nap trap. I’m angry that I’m poor, that I contribute nothing to this family because I cannot work. I’m angry that the government disagrees, and says I can work, I’m bitter for knowing all I would have to give up and trade to work: Work = give up my doctors’ appointments Work = give up my necessary rest times Work = resting instead of being a mother Work = resting instead of being a partner Work = not having the energy left to be a friend Work = not doing yoga, walking, or having any hobbies Work = getting up, going to work, coming home, and going right to bed. Repeat. I’ve done it, It sucks. Because all of my energy would be going towards WORK. I’ve done that, 80-hour weeks, for most of my adult life. Work =. Non-profit work They suck you dry. I’m bitter that I always worked for non-profits, got paid NOTHING, and now even if I get disability, it will be a drop in the ocean of expenses. And social security, the same. I’m angry at those that could never hear me ask for what I needed. And I asked, and asked, and asked. And they would not and could not hear. And chose not to hear. I’m angry at those that hid from me when I was newly sick. When I was so scared, when I was dying. At those that made me feel like I was never doing enough, even though I couldn’t. I can’t. And those that still make me feel this way. At those that could have helped me, and didn’t. Who chose themselves rather than helping me when I could barely walk, barely travel for treatment. I could have used help. Plans made, support offered, canceled. Sorry! Busy! Expenses! Projects! I’m angry that I’m still so isolated. So deep in the deep dark well. I’m bitter that I had so many things I want to do, and I don’t have the energy. The time. The money. Mike is planning a dive trip. I can’t go. I can’t be in the ocean. I can’t submerge into the inky blue rolling waves. I’m angry that social media forces me away from people I love, the harm I see being caused. I can't stick around for that. I’m angry at the expectations people have for me. And how I’m treated when I don’t meet those expectations. I’m bitter that I have no control over how my body responds. I’m angry at my dad for not telling me he had cancer, and without meaning to, put me in this constant cycle of pushing people away, not trusting anyone, not believing anyone. I’m angry that I must write these words, and no one will read them. I hate not being able to operate at even 50%, and how that impacts my husband and my kids. I’m angry for all that I feel was stolen from me. I’m bitter that so many people got this illness and were able to move right on. But I didn’t, I just stayed locked in step with it. Probably forever. I’m angry because I feel like I am not enough. For anyone. Even myself. And I may never be again. Didn’t sleep
Cried Slept Am a covid 2x survivor Have 4 chronic illnesses Baked cupcakes for Charlie’s 6th birthday Am in relapse mode Said I was sorry too many times Saw the sun Looked at the shimmering pool, the greenery around me The desert drying the sickness from my body Cleaned up the animal cages Gave up Kept going Got mad at the internet Got off social media (again) Signed up for COVID research programs Let Mike do more than his fair share of the household duties Am a fighter I was talking to an old friend the other day
it’s been a minute (or decades?) since we’ve chatted college buds, we got into lots of good trouble. Watching WWE wrestling, dancing, football games, homework. he taught me how to make the best drink using Country Time Lemonade, ice and vodka (remember??) I still use the recipe. He’s a good egg. He called me funny. He said I was a riot. ….. ….. I think forgot how to be funny?! It stumped me when he said that. I’ve been so bogged down in the mire of sickness I don’t know if I’m sick or it’s the ghost of sicknesses or whatever, it doesn’t even matter. The point is, I forgot that I like the funny in life. That I like to laugh to make people laugh. to ring the funny bell in a room full of people. It was nice to have that reminder. So, for your reading enjoyment, Here are the funny things I’ve learned over the last few fucked up years. 1) Don’t foster 2 giant parrots at the same time. They are loud, and one of them will scream “HELP! I’M IN HERE! HEEELLLP! HELP ME!” so you know the neighbors are going to call the police. The other will hide under his cage and wait for your children to come down the stairs so he can dash out and bite their toes HARD. We’re a free-range animal household, so…no more macaws (for now). The other bird, dog, and angry bunny are enough (for now.) 2) When in the tropics, always make time to have hermit crab races. After the sun goes down, and the kids have buckets, and we’re all screaming trying to catch baseball sized hermit crabs without losing a finger. Make your own fun(ny). Always win, even if you are playing against small children. As my Dad would say, it builds character. 3) Keep listening to Dark Side of the Moon every night since 1998 while you fall asleep. Repeat. And repeat. And repeat. And repeat. Repeat. Keep people around who are ok with listening to the same album over and over every day because it pleases you. 4) Make friend with people that will come a visit you, who chase gelato and churros, who bring corgis with them with their cute heart butts to your house, who force you out of bed to see your world the world any world, who buy you board games you’ve never heard of, who give you a reason to adventure and who let you expose them to scorpions, tarantulas, and wildfires all in one day. 5) Get a stand-up paddle board. Get on it. Take it out into the ocean. Start paddling. This is a sure-fire way for you to change polarity of the earth and the weather and bring in heavy wind and rain to the point that you’re not sure if you will make it back to shore. Thanks, Gringo, for the reminder. I knew I reached out for a reason. Thank you for saying words I didn't know I needed to hear. <3 We were really there to chase seagulls. <3 Alexa Hummus Novak I have a lot to say
and I have nothing to say. There are times in my life that I don't wan to to talk about or I can't find the words. A lot has happened lots of good things some hard things some wonderful things. I left Oregon 2 months ago after living there since 1989 and now live somewhere warm. I think this is the biggest, bravest thing I have ever done. We did it. As a family. Leaving was hard, hard to know where to put my energy, having to make choices between having emotions or driving south. Processing feelings or going back to Mexico for another treatment. We decided to just go South and see if that would help my symptoms. Somewhere peaceful, safe, quiet. I like the solitude, the sound of the birds, the peaceful mornings walking the dog before the sun comes up over the mountain with it's beams of light streaming upward before the crown of the sun peeks over. I like the evening sunsets, the way the palm trees look like they have diamonds on their tips as the sun sets behind them and the wind blows the diamonds they look like fireworks and then the darkness comes. How do you settle into a completely new life? How do you let go of the guilt? I don't know how to feel my feelings yet, the good ones and the hard ones. It's kind of like hanging upside down and seeing things from a different perspective. I will keep hanging here. I am grateful for a new perspective and the sun that slowly simmers healing into my body. People have magic numbers
that they see on clocks. I have no idea what 10:43 means to me. While I try to tap on this stupid phone my thoughts go to where we met you were there you were here always here. And as we get older together every year (every blessed year) I am stripped naked now. As I appear to you each day a different me. Sometimes with no energy, sometimes feeling ok, sometimes unable to do what I used to. You take it in stride, all of it. And I see what you hide, the few times a year you let me see you worry. I see it. I hear it. I am sorry. But life with you is still living in infinity. I've always been in a hurry. Well, maybe since we moved to Oregon, to the suburbs, where the life pathways are written for you much like the sidewalks. Clean, white, with direction, showing you exactly which next step to take. So there is an expectation that you will follow your sidewalk. I guess I've always been what the world wanted me to be. So I hurried to go to school, got to band class, got to drama class, got to college, had relationships, bought a house, etc. And worked, worked, worked. And worked. I think the first real choice I made without caring of other's expectations was when I married Mike. And had our 2 babies. But the rest of it wasn't for me. Living in Oregon, having respectable jobs, being "respectable".... it took a lot of my energy. I used to tell everyone that I lived my life in 15-minute increments. Being on-call 24/7 will do that to you. If there was a problem, or a friendship issue, or someone needed something, (even if it was people that I knew deep down weren't truly my people) I would fix it. I would work harder. If I hurried and worked harder, everything would work out. Right? Right? It turns out, none of that is true. It finally took getting sick and having all of my identities stripped away to stop hurrying. And once I did that, I realized... When I hurry myself, I take away from other’s divine timing too. So instead of fixing, instead of hurrying, I get quiet. I wait. I stand in muddy water, and let the detritus settle to the bottom, so I can see my bare, clean feet, and then I take a look at what I see in front of me, behind me, above me. And while I've taken that time, maybe things have shifted on their own. Or maybe I've figured something out. Or maybe I haven't figured anything out and need to go in another direction. But I realize how much my ego is involved in what expectations I set for myself, for others, and that I don't control those things. I cannot. It's not fair to anyone. So I won't. My life has shifted again, and I'm heading in a new direction, one that I've picked just for me. Now I'm just going to take care of myself, and let the divine timing do the rest for those around me. Original Art Piece by Michael R. Murray. Medium: Playa dust, burned pieces and discarded pieces of The Man, 2007 My Grandma always said shuffling cards seven times was as good as shuffling them a million
I wondering if shuffling things in your life seven times can bring the same outcome as shuffling cards Being seven was my favorite year of being a human Full of toads, turtles, forests, beaches, leaf piles, learning more of who I was, being a free child It's a Newman-Shanks-Williams prime, a lucky prime, a "happy prime" It's the lowest natural number that cannot be represented as the sum of the square of three integers Seven is my name when I'm at Burning Man, what people call me there on the bare, alkali desert And Seven is sometimes my name when I am not there, but out here in the real world There are seven chakras in the body Seven chakras representing grounding, creativity, confidence, love, communication, seeing the big picture, and spirituality Our skin regenerates every seven days Every cell in our body is regenerated every seven years I kiss my family 7 times for good luck Or they kiss me, those kisses all over my face, those sweet children with wet little mouths My husband was born on the seventh in nineteen seventy seven The perfect combination for a person to be born on There are seven seas And seven continents There are seven colors on the rainbow. Do you see them? My Dad was born in New York, Brooklyn.
His summers were spent on the Jersey Shore, where he spent time getting sunburned with his beloved cousins. He was a redhead, and always the butt of the jokes. He loved it. They always got in so much trouble. We lived in rural Kentucky when I was born, but he wanted us to have the same experience of the salt in our hair, turning it lighter, of going to bed with sand between our toes, and of being together as a family. So, my parents saved all their money for years, and bought a small piece of land in the Outer Banks of North Carolina. And they built a tiny beach house, before the crush of people came. I remember visiting, meeting the builder (his name was Tex), and of staring out at the wide open Pamlico sound, that was flat, full of oysters, blue crabs, jellyfish, and tiny islands dotting the inner waterway. We spent every holiday and break there that we could. It was our escape from backwoods Kentucky. We had a tiny dock, a tiny boat (Bob 'n' Dobbin), and a tiny house. There was a pizza place called Nino's that made the best pizza, and I remember how excited we were when they opened a Dairy Queen, walking home with our butterscotch dipped cones melting all over our tiny fingers. It was paradise. The house was built on stilts, and when the waters were high, they would cover the sandy floor beneath the house, the water churning so that you could not see the sandy bottom through the granular clouds, and we would be trapped, and I'd sit with my feet dangling into the ocean from the stairs watching them disappear. We would take the ferries around the waters where Blackbeard roamed, to Okrakoke Island where he was beheaded. I loved being around the waters where real pirates prowled. There were even real shipwrecks. We saved money and donated it when the tides were rising, and they had to pick up and move the Cape Hatteras Lighthouse, which I still think is the most beautiful lighthouse of all time. They ended up selling it to move us to Oregon for a "better life". The tiny house is still there, it sometimes comes up for sale. I'd like to rent it sometime, to take my own family to that magical place, to watch them enjoy the water, go crabbing using just a string, hook, and hunk of chicken. The patience it takes to wait until the blue crab has a good grip, and then you gently and slowly pull it up and net it. The furniture is still the same. my father’s secret last requests…
a bulldog concealment and a motorcycle I’m back.
Been years Too long Too much To love To grieve To land To sigh And be satisfied With where I am. You came last night in a dream - I was laying down on the floor getting bodywork done. I think the person was at my feet.
Suddenly, your face hovered over mine, we were facing opposite directions. "Hi!" You said, with your goofy smile. "Hi!!!" I said back. There was a pause. "I love you." You said. "I love you too." I said. "I knew you would come and see me today". "You did???" You said. "Yes, " I said. "I wish I could get up and spend time with you, but I'm getting work done." "That's ok." You said. I glanced to the left and saw a woman with brown hair, sitting on a bench reading a book. I think she was your friend. And you were gone. You seemed happy. And I felt happy. Good to see you, my dear friend. Visit me again in my dreams sometime soon. When you write a poem and push publish and it disappears?
Ok Universe, the world didn't need to know those words. :) Being sick is full of platitudes,
so is Life, I guess. "Well it could be worse!" (it could be worse, but being in pain every day, always trying on the quest for something different that will help with all the symptoms of all the things wrong with me, watching the impact on my life, watching the money drain, feeling like a drain, watching myself circle the drain, not being able to look beyond being sick towards any future at all is not the best place to be.) “You need to get out more; that will make you feel better…” (Some days I wake up wondering if I will have the strength to get through the day. Getting out DOES make me feel better, but stopping at talking to people that want to know how I am doing, makes me tired and sad. I go to the pharmacy. I go home. I get tired. I go to bed. Getting out does not make me feel better.) “But you look so GOOD!…” (It's a fake wipe on tan. And makeup. Sometimes it's the right cocktail of drugs. If I took it all off I'd look like a zombie. I just got diagnosed with myalgic encephalomyelitis, you can't see that sucker. I still can't even pronounce it. You can't see the long-covid either, or the fibromyalgia. Or the EBV. They hide really well, sometimes the doctors can't even find them.) “Have you tried exercise? That can be very beneficial for illnesses…” (Yes, and yes, and no.) “I wish I could stay at home all day…” (No, you don't. You really don't.) “Are you sure, it’s not just in your head?” (Possibly? Isn't everything just in our head? But I have tried to get out of my head, I'm pretty good that that now, and the illnesses are still there in the body, just moving around, lolling, sipping on their cocktails. They are loving their new vacation spot. I can't have the cocktails and kick it with them.) "Today is a gift. Be grateful for it." (I try. Every day. Every. Day.) It is okay to be angry about an apology that will never come.
It is okay to feel stuck today and in the flow tomorrow. It is okay to be confused about the future, which future, what future. It is okay to not know the answers. None of us really know the answers. It is okay to admit you don't. It is okay not to rush towards a goal, a conclusion, an ending with a bow. To allow the process to unfold without pushing or straining, with a truly open heart, without a personal agenda other than love. And see what comes. What will come? There is always another way.
We are creative beings, born into a strong set of rules and guidelines that define us and our societies. Raising humans, who are born as souls, into our environments that ask them to sit up straight, use the right fork, to bow at the right time, to wear this type of clothing, do not hit, to do not grab from another, do not believe in fairies. To work hard, even if it's not your passion, because you need the money to buy the things. Because this is just how it has always been done. But has it? And does it? And do we? Why are we not questioning more, as the world seems to die around us? We should call the caterpillars who are literally a physical manifestation of change, not just metaphorical examples. The snakes who continue to shed their skins, the frogs who undergo such metamorphosis, to start as a fish and grow legs and leave the pond. There is another way. Love can come before power. Humanity can recognize and honor the individuality in us all. The darkness and shadows have shown where they are hidden, and we can shine the light on the depths where harm lurks. Nature is our teacher, guiding, showing us the way if we are quiet enough to listen. So, let us be quiet. If only for 5 minutes, to see what comes. |